Living Better with Parkinson’s

"Life is a journey, not a destination. Happiness is not "there" but here, not "tomorrow" but today." Sidney Greenberg "The moment in between what you once were, and who you are now becoming, is where the dance of life really takes place." Barbara De Angelis Précis: This post reminds the Person (People)-with-Parkinson's disease (PwP) that …

A Forgetful Friday: Journey With Parkinson’s

"Memory only becomes interesting through its struggle with forgetfulness." Adrian Forty "As you get older three things happen. The first is your memory goes, and I can't remember the other two." Norman Wisdom Précis: A short story about being forgetful. Taking our daily requirement of essential drugs is vital to our everyday function with Parkinson's. …

Apathy and Parkinson’s

"Apathy is the acceptance of the unacceptable." John Stott "I don't know, I don't care, and it doesn't make any difference." Jack Kerouac Definition: Apathy (ap·a·thy, /ˈapəTHē/) lack of interest, enthusiasm, or concern. Occurrence of Apathy in Parkinson's: The presence of apathy in Parkinson's is between 17% to 70%, the wide range is partly due …

Allies Against Parkinson’s

"Resilience is not what happens to you. It’s how you react to, respond to, and recover from what happens to you." Jeffrey Gitomer "Resilience is very different than being numb. Resilience means you experience, you feel, you fail, you hurt. You fall. But, you keep going." Yasmin Mogahed Introduction: Several years ago, someone gave me or …

Treating Parkinson’s with a Dopamine Agonist: The Ropinirole Taper

"The key to change is to let go of fear." Rosanne Cash "Worry does not empty tomorrow of its sorrow. It empties today of its strength." Corrie Ten Boom Introduction: Seven years ago, when diagnosed with Parkinson's, I began taking Ropinirole, a dopamine agonist. And in the last month, I decided to stop taking Ropinirole …

Wellness Checklist for Life in the Presence of Parkinson’s

"Today is the first day of the rest of your life." Abbie Hoffman "Your life is a work of art that you will work on the rest of your life." Richard Blanco Introduction: The year is closing in on us, one for the record books; a year like no other, it would seem. The Pandemic …

Botulinum Toxin for Treatment of Dystonia, Sialorrhea (Drooling), and Tremor in Parkinson’s

"Being happy doesn't mean that everything is perfect. It means that you've decided to look beyond the imperfections." Gerard Way "Rules for Happiness: something to do, someone to love, something to hope for." Immanuel Kant Introduction:  I have a new friend with Parkinson's. He has always been very active and genuinely enjoys playing golf. However, he …

A Parkinson’s Diagnosis: You Still Control Your Life

"Your life is a work of art that you will work on the rest of your life." Richard Blanco "Today is the first day of the rest of your life, and if you screw that up, you can start again tomorrow." Ingrid Weir A Not So Typical "Anniversary" Blog Post:Six years ago this week, I …

The Practical Matter of Carrying Medication for Treating Parkinson’s

"Trust yourself. Create the kind of self that you will be happy to live with all your life." Golda Meir "Start where you are, use what you have." Arthur Ashe Introduction: Within 24 hours of arriving in Kyoto, Japan for the World Parkinson Congress (June 2019), I was asked by several people, "How did I …

Brief Report: Hair Loss Linked to Dopamine Agonists

"It is foolish to pluck out one's hair for sorrow, as if grief could be assuaged by baldness." Marcus Tullius Cicero "Anyone can be confident with a full head of hair. But a confident bald man - there's your diamond in the rough." Larry David Introduction: When you play golf, they frequently pair you up …

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