“Gratitude is when memory is stored in the heart and not in the mind.” Lionel Hampton
“Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow.” Melody Beattie
A Time to Say Thank You: So much has changed since receiving the diagnosis of Parkinson’s. I am deeply grateful to the many people who have been part of my journey with Parkinson’s. There isn’t enough time or space to mention everyone, but I hope you understand how much I appreciate your presence in my life. At the end of each semester of my undergraduate course on the biology of blood diseases, I would simply say: “If the only prayer you ever say in your entire life is thank you, it will be enough.” Meister Eckhart
•I owe much to the neurologists who have treated me and outlined my treatment strategies. My endless questions do not mean I do not support your decision; they are meant to help me understand the logic and process behind the therapy.
•Likewise, I treasure the advice of many physical therapists who have enriched my world with their philosophies around movement and exercise. Exercise is so important, yet so easy to skip day after day, week after week. Your inspirational and supportive words keep me moving.
•I have been educated by so many of you in the world of “people with Parkinson’s.” Your bravery in the manner you approach your Parkinson’s has provided me with valuable strategies to battle my own disorder, and we share a common goal of seeking wellness in our approach to living.
•I admire the scientists and clinicians who study the processes around the many facets of Parkinson’s. It seems a daunting challenge; yet, every day, as we take one step forward and two steps back, we gain a better understanding of the disorder. Ultimately, you are paving new paths to better therapies, and hopefully one day, how to prevent Parkinson’s, and of course, how to cure this wicked disease.
•My co-authors who accepted the challenge of writing a paper together. Because of our collaboration, I have learned a lot about Parkinson’s, and I am very grateful for your patience with my stubbornness. If we have helped educate anyone about Parkinson’s, we achieved the original goal for each paper.
•My family and friends have stood alongside me through the challenge and misery of Parkinson’s. They tell jokes, reflect on the past, play golf without expectations, and continue supporting me as life moves forward. They have accepted these small changes as they come.
• Finally, Susan, my Care Partner and best friend, has learned so much about Parkinson’s and manages the micro-changes that come with this disorder. In many ways, she is almost a prisoner to my Parkinson’s. Parkinson’s changes you; it toughens you to deal with both motor and non-motor symptoms. There is also a hint of evilness in the therapy itself; most are powerful regulators of the brain, and over time, they take their toll. Yet, through it all, she has been caring and supportive of my life with Parkinson’s, and she remains persistent in accepting the challenges as they come.
“Appreciation can make a day, even change a life. Your willingness to put it into words is all that is necessary.” Margaret Cousins
Take a Moment to Say Thank You. Whether you write a note, send a text, make a phone call, or send an email, take time to express your gratitude. Mention how much you appreciate someone for being part of your life with Parkinson’s. The smallest gesture can often evoke a reassuring response. Clearly, those who are important to you know it, but it’s always nice to remind them, and they will sincerely say, “You also matter.”Â
“The ship of my life may or may not be sailing on calm and amiable seas. The challenging days of my existence may or may not be bright and promising. Stormy or sunny days, glorious or lonely nights, I maintain an attitude of gratitude. If I insist on being pessimistic, there is always tomorrow. Today I am blessed.” Maya Angelou
Journey with Parkinson's 