10 Rules for Living With Parkinson’s

“Here’s a rule of life: You don’t get to pick what things happen to you” Rory Miller

“If you do not step forward you will always remain where you are.” Nora Roberts

Introduction: We learned the Golden Rule in childhood. The most familiar version of the Golden Rule says, “Do unto others as you would have them do unto you.” Our parents undoubtedly also gave us rules to follow as we grew up. And at some point, we started making our own rules. Now, with Parkinson’s, I find myself re-inventing this list of rules every few years. For past examples see the following blog posts: “10 Life Lessons With Parkinson’s Disease” (click here); “Frank Words on Living With Parkinson’s” (click here); and “2019 Parkinson’s Awareness Month- 12 Rules of Life With Exercise” (click here).

Do you need to read someone else’s rules or guidelines for living with Parkinson’s? Likely not. However, some of these might resonate with you. In that case, they likely contribute to your own modifications in your life or rules or guidelines. Then, it has been of some benefit. Regardless, a list from me is to help me better navigate life amid some minor issues. Enjoy!

“Actions have consequences… first rule of life. And the second rule is this – you are the only one responsible for your own actions.” Holly Lisl

10 Rules for Living with Parkinson’s:

  1. Embrace your new self, Parkinson’s. Changes will happen gradually, but at your core, you remain.
  2. Your real friends and family will accept this new form of you. They care for you regardless of your Parkinson’s.
  3. Make the most of today without worrying about tomorrow or dwelling on the challenges you faced yesterday.
  4. Always live with hope, resilience, and a positive attitude; these will help you manage the obstacles presented by Parkinson’s.
  5. Reflect on the songs and moments of joy and love. Trust your instincts to repair and nurture all friendships; they will provide a foundation for combating Parkinson’s.
  6. Make sure to take all your medications on time. Stay informed about existing and new technologies and medications being tested. Through research, please never lose hope for a better tomorrow.
  7. Strenuous exercise that includes both aerobic and resistance training can help slow disease progression. While some exercise is better than none, a larger quantity of exercise is the most beneficial.
  8. When necessary, seek the path that offers advice, support, and kindness, which together will create a strong base to endure the challenges posed by Parkinson’s. 
  9. Once you grasp the positive aspects of your world and life, Parkinson’s and its quirks will still exist in you; however, gratitude promotes the ā€˜4H Club,’ which includes being happy, healthy, heartfelt, and hopeful.
  10. Parkinson’s reminds us that life is unfair. Yet, your life can be a positive guidepost for influencing others with Parkinson’s. Stay focused, stay informed, and, most importantly, stay you.

NOTE: Download a 1-page handout/display containing the 10 rules (click here).

“Your time is limited, so don’t waste it living someone else’s life. Don’t be trapped by dogma – which is living with the results of other people’s thinking. Don’t let the noise of others’ opinions drown out your own inner voice. And most important, have the courage to follow your heart and intuition.” Steve Jobs

Cover Photo Image by Rick Wunderle from Pixabay

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